HOPE FOR JAVIER

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HOPE FOR JAVIER'S MISSION IS TO CREATE HOPE WHERE NONE (YET) EXISTS. BECAUSE DUCHENNE MUSCULAR DYSTROPHY IS CONSIDERED AN ORPHAN DISEASE, ONE THAT PHARMACEUTICAL COMPANIES CONSIDER LEAST PROFITABLE AND THEREFORE NOT WORTHY OF THEIR ATTENTION, IT IS UP TO PRIVATE INDIVIDUALS TO FUND MUCH OF THE RESEARCH. THROUGH FUNDRAISING AND RAISING AWARENESS, HOPE FOR JAVIER IS CHANGING THE OUTCOME FOR BOYS DIAGNOSED WITH THIS DEVASTATING DISEASE IN TWO WAYS: BY FUNDING TRANSLATIONAL RESEARCH THAT FOCUSES ON MOVING SCIENCE FROM THE LAB INTO HUMAN CLINICAL TRIALS AND BY FUNDING INITIATIVES THAT MAKE IMPROVEMENTS TO THE STANDARD OF CARE, THE QUALITY OF LIFE, AND THE GENERAL OUTLOOK FOR ALL THOSE DIAGNOSED.

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Source: IRS filings. Operating status unconfirmed.

Description: filing ending 2025-12-31.

Website: filing ending 2025-12-31.

Phone: filing ending 2025-12-31.

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